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Anonymous
Posted on Saturday, March 13, 2004 - 02:28 pm:   Edit Post Delete Post

Im about to loose my mind with this hair loss thing. I have been to a dermotologist and he said telogen effluvium... well..that could be from several thing. i was taking ativan and tylenol 3 and or percocet for headaches alot of last year... he didnt think the drugs were the casue but i think so!I also had a baby a year ago. my hair started falling out at the roots about 6 months ago and now im so thinned out i am constantly in tears. im only 30.so im confused as to whether it was drugs,or baby a whole year later. i also go it highlighted about 2 months ago like i always do.it didnt look too bad then.DUMB move its fallig out more and more now. anyhow does anyone know how long drug induced effluvium lasts, do you need to stop ALL of it or lower the dosages. is there anythign besides rogaine to put on it to help. HELP HELP> i really really am so focused on this i cant enjoy my life!!!!!!!Thanks alot
 

Tom Hagerty
Posted on Sunday, March 14, 2004 - 01:36 pm:   Edit Post Delete Post

Anonymous:

Both Ativan (lorazepam) for anxiety and Tylenol to relieve pain should not be taken for long periods of time. Ativan, especially, is habit-forming. There is no specific warning in the inserts that these drugs cause hair loss, but who knows. Some of the antidepressants have no warning about the possible side effect of hair loss either, but anyone who visits the hair-loss forums knows that they do cause some thinning.

I know nothing about Percocet except that it's habit-forming and should not be used with Tylenol and antidepressants.

Telogen effluvium can be triggered by childbirth and certain medications. The time-frame for resolution of TE (6 to 72 months) is so variable that it's hardly an answer at all. It won't calm you down.

Talk to your doctor. But after that bit of nonsense advice, I suggest having a good diet that gives you sufficient iron, the B-complex, and the essential fatty acids like omega-3. Some dermatologists believe that sufficient dietary iron will hasten the resolution of TE.

Of course my advice which will probably not be heeded, is to cut down on or eliminate the drugs you've been taking. This can't be done all at once though. If you quit cold turkey, there could be repercussions.
 

elayne
Posted on Sunday, March 14, 2004 - 02:50 pm:   Edit Post Delete Post

Hey thanks alot for the advice. i have already stopped takign the meds. I suppose that too will take its time to get out of my system.Im still confused .....will ALL the hair fall out with this effluvium due to meds or childbirth , or does it just usually thin out so badly you want it all to fall out:{if this lasts for a few more months i assume i will be bald , cause i have baby fine hair as it was. ALot of it ,just fine.does it usually become less hair that falls out as the drug or whatever leaves the body?It looks as though i have a littel bit of regrowth near my hair line, does that usally fall out as well if this was drug induced..??im still confused.So sorry for all the questions. The dermotologist i went to was very uninformative.i learned more for your web sight and people'sexperieces then i did from him!! anyhow i suppose its dumb to assume you can answer those above qustions just by an email. but...? also any advice on that rogaine?? thanks so much for your time.iI was THRILLED soemone answered me!!thanks alot
 

Tom Hagerty
Posted on Monday, March 15, 2004 - 08:42 am:   Edit Post Delete Post

Elayne:

You're right, I can't answer all your questions - too much speculation involved. One thing I do know, though, is that once the trigger for TE is gone, there is a high probablity that your hair will grow back. A good diet full of nutrients will help. So will Rogaine. Some people have severe itching with Rogaine. Is the speeding up worth the price? Many women get their hair back just fine without this drug.

Be sure to read those articles about TE on www.keratin.com. They will arm you with solid information.
 

Anonymous
Posted on Monday, March 15, 2004 - 04:07 pm:   Edit Post Delete Post

I WAS TAKING LEVAQUIN FOR THE LAST 8 WEEKS. MY HAIR IS THINNING NOW. I WAS WONDERING IF IT WAS FROM THE MEDICATION. ANYONE KNOW ABOUT THIS.?
 

elayne
Posted on Monday, March 15, 2004 - 05:22 pm:   Edit Post Delete Post

Tom, thanks so much for taking your time to try and answer some of my many questions. It is nice to know im not alone with this. i know in all of life,... hair loss is trivial, but when its YouRs, and its been part of your identity all your life ,its confusing and kinda scary!! AGain there should be more people in this world who actually want to help people, and are not just out to sell soemthing! so thanks! One last question on the rogaine. If i opted for that, am i just setting myself up for more disappointment? I have read that the regrowth will fall out once its stopped being used..or is that mostly for the pattern baldness???also is the fact that there is some tiny regrowth on the hair line any sign that this is stopping ??/ Sorry just reaching for any hope.??:{
 

elayne
Posted on Monday, March 15, 2004 - 07:37 pm:   Edit Post Delete Post

i forgot to ask something else along with my last response...i have alwasy been a very anxious person...i was wondering WILL that in itself casue effluvium, and can that alsoHINDER hair regrowth or casue soemone to loose all their hair????i know I know, relax, but NOW is REALLY not a time to learn that.i am working on it, but This hasnt helped.!anyhow thanks again....elayne
 

Tom Hagerty
Posted on Tuesday, March 16, 2004 - 08:22 am:   Edit Post Delete Post

Elayne:

If what I read is true, Rogaine is supposed to "jump start" the regrowth process after the TE triggers have been removed. When your hair starts to bounce back, you stop using Rogaine. You will not lose what you've gained as you would if you had pattern baldness.

Anxiety, tension, stress - these are not great mental states for someone who wants luxuriant hair. But you just can't will yourself into tranquility. If you are subject to stressful times, though, you're not going to lose "all your hair." Psychological stress is low on the causal list for hair loss.

So what's to be done. I think having a little knowledge of the problem you're concerned with may ease the tension a bit. A quick prescription from a dermatologist sometimes might just add to the tension.
 

elayne
Posted on Tuesday, March 16, 2004 - 04:36 pm:   Edit Post Delete Post

hey Tom i guess my one last question last time went OUT THE DOOR:{ sorry!...I wasnt sure what you meant by the last sentense? a quick perscription form a dermatologist? what kinda perscription?/ is there one??? Also i did have another question. imagine that>:{} my thyroid and ferritin was normal..exaclty how much iron would you recomend as far as mg. for the best results for regrowing hair?The one a day i take now has 29mg of iron i also started taking a b vitamin complex and that omega 3..am i overdoing this now?also....... isnt the regrowth supposed to start out very short and baby fine. since i have never actually WATCHED my hair grow until NOW, am i safe to assume this is the beginning of regrowth.. mostly fine short hair around my hair line....anyhow thanks alot..im really confused as to if i need more iron ect??
 

Tom Hagerty
Posted on Wednesday, March 17, 2004 - 08:52 am:   Edit Post Delete Post

Elayne:

"a quick perscription form a dermatologist? what kinda perscription?/ is there one???"

Don't take me too literally. What I meant by the "quick prescription" was that dermatologists usually don't have time to evaluate your problems. They send you home with the recommendation to get Rogaine and assure you that everything will be OK.

My recommendation is to get your nutrients from natural sources if you can. But I'm sure the lure of all those bottles with their attractive labels anouncing the milligrams is almost too seductive to resist. And of course taking a pill is easy too. It tends to give you the secure feeling that you're doing something right for your body and hair.

I'd rather have you read a good book on nutrition than give you a number for your iron. This mineral is tricky. You don't want too little and you don't want too much. You also want a source like red meat from which the iron can be absorbed.

Fine hairs never change into thick hairs. You have to understand the hair cycle before you can understand what happens. Read all about it on Pattern Baldness.

 

elayne
Posted on Thursday, March 25, 2004 - 03:18 pm:   Edit Post Delete Post

tom Im back with yet another question for you...since you sem to be one of the only helpful people i have spoken with!!! For TE....what do you think of aldactone? is it worth trying for Te??/i have read soem on it, and seem to get mixed opinions?? what do you think>?????? i was going to try to use it with the rogaine..../thanks alot!
 

elayne
Posted on Friday, March 26, 2004 - 10:06 pm:   Edit Post Delete Post

any one else have any thoughts of the benefits of aldactone???help... if ya can Tom ,or anyone!! i am afraid to take it got a perscription, but have herd differnt views..thanks alot...elayne my derm said its worth a try but thts about it. hes not too helpful. maybe i need a new one too. anyhow does this really help in an effluvium case?
 

Anonymous
Posted on Saturday, March 27, 2004 - 11:12 am:   Edit Post Delete Post

Hi elayne-
I am having the same problem as you I think, I posted under Female pattern hairloss topics , as 29 year old w/hair loss from beta blocker (if you want to read it).
My TE (I think and hope it is) is caused by use of beta blockers for migraine. I am still pulling massive clumps from my hair everyday, and there is not much left to lose. I have only been noticing this for about 3-4 weeks, and already about 1/2 my head is gone, so 4-6 months and i am beyond bald :-( What have you learned can help, is there anything you recommend from your experience? will Rogaine help 'kick start' the regrowth process?? They say rogaine only helps if loss is due to hereditary balding, and it's a life long process, if you stop, you will lose all the new growth. But in our case, maybe it will help?? Tom, do you know the answer to this??
 

elayne
Posted on Saturday, March 27, 2004 - 12:46 pm:   Edit Post Delete Post

Hey there.what i have heard and even from Tom, that rogaine CAn help. i think the loss after you stop the rogaone is for the female pattern baldness not the te. thats what my derm said as well. i have also read alot about aldactone. you can read it on the net.its supposedly helped ALot of women.Im game for anything.Im only 30 and about to seriuolsy go nuts. im so obseesssed wiht it and thats not good either. ...so yes rogaine is suppose to kick start it. my derm aslo told me to use the mens becasue it is stronger and the womens is almost useless..... just what Ive heard. I have alos heard that the Te can last yrs according to Tom too,!! so i am with youi had a beautiufl head of long blond hair., now its so thin and yucky looking.its really depresssing to say the least!every time i was it, so much comes out im surprised i have any left. i know trust me how this all feels!!!!! im still waiting for toms response on the aldactone. i have a perscription for it, and want to try it.... anyhwo hey im gonna giv eyou my email. maybe us havign moral support can help soem ya know!! im really not some nut case either. and wouold love soemone wiht the same thing going on to talk to !.hahahah dennis@firstsaga.com... write if ya want. we cna talk more privatley!:}also form what i have been told over and over. good nutrition can really help the growth process.! i had a baby in march2003 , then was on meds, then had major stress episodes, poor nutrition, and lots of fast weight loss. and i do think it was a combo of things so i guess anything can trigger this horrible freaky thing!!!>{ anyhow hope to talk to ya!HANG IN THERE!!!!!!!!!.

.
 

Tom Hagerty
Posted on Sunday, March 28, 2004 - 08:52 am:   Edit Post Delete Post

Women who use Rogaine to kick start hair regrowth during their bout with TE don't have to continue using it.

Many women have had success with Aldactome which is the brand name for spironolactone, or as it's affectionately known - "spiro." One of these women is Karen Shelton the owner of www.hairboutique.com. She has written favorably about spiro.
 

elayne
Posted on Thursday, April 01, 2004 - 02:42 pm:   Edit Post Delete Post

Hi Tom its the pesty ,vain, woman again....another question. the derm i am seeing said my acne is terrible. he was more concerned with that than hair loss. anyhow my question is.....he gave me doxycline or virbramycin for the acne. my question is..... Have you heard anything about tetracyclines casuing hair loss??? is it safe enough to take that with the hair loss i am having or can it start more efffluvium as if i have much more to loose1:{ anyhow should i wait until the hair prob is hopfully solved then take the acne stuff??
one other question....how long if it is going to work(my derm says it wont, but i demanded to try at least)for the aldactone to start its work???????thanks TOM!!!!!!!!!elayne
 

Anonymous
Posted on Thursday, April 01, 2004 - 05:46 pm:   Edit Post Delete Post

From what I have read, but Tom may know more about it, Adactone or Spiro is an anti-androgen which will help with acne since acne is caused by too many androgens.
 

Tom Hagerty
Posted on Friday, April 02, 2004 - 04:39 pm:   Edit Post Delete Post

Elayne:

I'm losing hair myself just reading about your doxycline, virbramycin, tetracycline, etc. Of course those drugs have side effects if they are used over an extended period of time, hair loss being one. Isn't there some great diet that you could go on, eliminating all the transfats and processed food and junk food from you life?

I wish you'd read this article - Coenzyme -A. Does it make any sense to you? I think if I had acne I'd try something like this first before I saturated my body with the cyclines.
 

elayne
Posted on Friday, April 02, 2004 - 05:08 pm:   Edit Post Delete Post

thnaks for the advice Tom i think i wont take that stuff for now!I had another quick question do any of the vitamins in these hair regrowth vitamins liek biotin and panthonic acid really help in hair growth?there is one by nexus called vitatress. that has those and others like thiamine and riboflavin b6 ..
another valled HAAIR has the same i listed but vitamin A from acetate, folic acid, b12,iodine ,zinc ect am i wasting my money or can these actually hlep effluvium or at least regrow soem of the hair?????just wondering before i waste more money!!!!!!!
last question with the aldactone, is 100 mg enough a day to start, and how long before resluts sare posibbly noticed wiht it........sorry for all the questions as you already know im OBSSESSED!!!thank again.elayne
 

Tom Hagerty
Posted on Saturday, April 03, 2004 - 01:38 pm:   Edit Post Delete Post

Elayne:

There are 25,000 different supplements in the various health food stores and pharmacies. The FDA has almost no control over these products and only limited control over labeling practices.

OK, here's what it says about SPECIAL HIGH-POTENCY FORMULA HAIR tablets - "Promotes Healthy and Vibrant Hair - stress, pollution and diet can all have an impact on the health of your hair. HAIR tablets is an exceptional blend of targeted nutrients that form the nutritional foundation you need to maintain radiant, shiny hair. Made with excellence HAIR tablets return the vibrancy and silkiness to even the most damaged hair."

If you believe that, you'll believe anything. Eat good nutritious meals, take some flaxseed oil, vitamin E, and perhaps brewer's yeast. Take the pills, though, if it makes you feel good about spending money on brilliant advertising copy.

I can't give you advice about aldactone.
 

Anonymous
Posted on Monday, April 05, 2004 - 11:11 am:   Edit Post Delete Post

My hair is noticeably thinner after taking Levaquin for a year...I took 125 mg/day to prevent UTI's. I resolved that chronic problem before realizing what the Levaquin was doing to my hair. I now wear hair pieces and am totally devastated. I started wearing the hair pieces while still taking the Levaquin, without realizing that it was the Levaquin destroying my hair. I just bought some Hair Vitamins from GNC. I've read that some antibiotics can destroy biotin, which is necessary for hair. So I'm a believer. I went to my dermatologist, who gave me psorcan. So I'm hopeful that my hair will return. I'm considering Rogaine as well, since I am beside myself with preoccupation about losing what was once beautiful hair...The FDA should know about this terrible side effect...
 

elayne
Posted on Monday, April 05, 2004 - 11:38 am:   Edit Post Delete Post

Hye TOm elayne again with a daily question. sorry for beign a pain, but i did read some more on rogain, and is it safe to assume i wil shed alot more while useing this product? i have been using the 5%..i can only use it once a day casue the junk is so nasty and greasy looking so i do it at night. Will there be any chance of it growing at all with only one aplication a day...... and another question the really long hair that i do have is shedding wors ethan ever. Rogain can do this for awhile in the beginning corrrect???? how long does that usually last. now i have some tiny pieces looks like might be growing , some broken offand the long falling out,im goign nuttyhere!!!!1 HELP HELP HEHELP HELP.................................................message for girl above..or guy?.......
. i do knwo what you Feel trust me..I too a had beautifl head of long blond hair now i look like my child got ahold of it andgave me a bad cut!:{ it really is depressing. but havign talked to tom and soem other, its does get better and will grow back if it is from meds, which mine was due to as well. anti depressents and anxiety meds im not sure of the time frame it can take for the effluvium to end once you stop the drug?? 6 months???Is that Correct TOm?. maybe TOm can answer that one too, hang in there and keep your head up.. even with less hair, little humor thats not funny sorry! anyhow i wish therewas a support group i could go to to talk with others too, that feel this depressing thing!!!!!!I need that understnading right now and no one knows what ya feel nunless they wantch hanfulls of hair falling into your hand daily!!! anyhow... good luck to YOU an TOM thanks for letting me bug you over and overa gain......
 

Tom Hagerty
Posted on Tuesday, April 06, 2004 - 08:12 am:   Edit Post Delete Post

Elayne:

Rogaine is responsible for some shedding when you first use it but I can't give you a definite answer how long the shedding will last. Most people claim that it's a short period of time though - perhaps less than a month.

A support group might be a good thing for people with TE. You could compare your experiences with Rogaine - is once a day enough, how about three times a day, how about the 5% stuff instead of the weaker version?

I can't give you the answers. Support groups always have answers. The problem with support groups is that they often provide too many answers. They also provide a lot of mutual reinforcement and mutual deception. But it is good to have someone in the same situation as you to hold your hand. I'm no good at holding someone's hand.
 

elayne
Posted on Tuesday, April 06, 2004 - 03:57 pm:   Edit Post Delete Post

Tom. as far as the aldactone...have you heard of women using it wiht sucess for effluvium. need to know this before i go any further with it. Im scared. THis derm i have been going to is usless i want to switch but wiht hmo you know etc. anyhow.. my only questions is have you heard suscess stories of women wiht telogen effluvium on this adactione?
 

elayne
Posted on Tuesday, April 06, 2004 - 10:00 pm:   Edit Post Delete Post

tom one last thnig to ask with my above quesrtions then im gonna leave u alone.. my derm told me to use the rogain.......he said with TE it shouldnt fall back outm after i stop using it. but it says in the box....??, thats only with female pattern bladness.??WAHT??Im REALLY confused. now Im confused about the the rogain and altactone and ready to give them both up, but scared i may loose help.make sense???????????HELP
would your best advice be in your opionion, just let nature take its course,, or try what they suggest. I promise i wont llet it go past her;;just want your opinion AGAIN>>>>>>>>>
 

Tom Hagerty
Posted on Wednesday, April 07, 2004 - 11:32 am:   Edit Post Delete Post

Elayne:

Spironolactone and Aldactone are the same drug. Women have had success with Spiro for TE but this does not mean a recommendation. Read about the drug and make your own decision if you want to start - Medline. This is a trusted site with National Institutes of Health drug information. Click Drug Information and then click Spironolactone. You'll notice side effects, but the potential for side effects with this drug is not great.

If you use Rogaine to help you with your TE problem, you will not have to continue with it when the problem is over.
 

elayne
Posted on Wednesday, April 07, 2004 - 01:24 pm:   Edit Post Delete Post

REally ??? why do you say that about the rogaine.? So i was correct when i read about the TE use of the rogaine beign sucessfll ..So its just the hereditarty ones that would have to use it for life. so liek now I can see a little bit at the hair line. do I conutinue to use it until its the lenght i desire...then when i stop, it will grow on its own and NOT fall out with discontinuation..Correct??So is that what it meant on the boxes only femle paterna and heredity. NOT TE> so im safe to give that a try >>>?????well thats good news.!why is that though that after the Te is over the rogaien wotn stoppping wont take the hair back out??is it casue Te is usually atemp thing?THANKS!!!!!
 

Tom Hagerty
Posted on Thursday, April 08, 2004 - 07:25 am:   Edit Post Delete Post

Elayne:

The cause for TE is different from the cause for pattern hair loss. Once TE is reversed, you no longer need the Rogaine, and you don't need to use it till your hair gets a certain length either. My advice is, when your hair starts returning, stop using it.

But of course don't do anything again to trigger the TE, like crash diets, acne medication (Accutane), antidepressants, etc. Eat nutritious food and think happy thoughts and have a good summer.
 

elayne
Posted on Thursday, April 08, 2004 - 09:23 am:   Edit Post Delete Post

since you menntioned acne meds. is retin A alrigth.i have been using that for t=years.,i suppose if that had been the trigger, it would have happned six years ago correct? Thanks alot TOm for talkign wirh me thepast few weeks. Really has helped and you have been a real support systmem! you have a good summer too. Hopefully iw ont pop in wiht more questions.hah
 

elayne
Posted on Thursday, April 08, 2004 - 10:44 am:   Edit Post Delete Post

oops. sorry did pop up wiht one more questions SORRY. with the aldactone.i read the sight you sage me and as you said it didnt list alot of side effects. Well one questions was once you topped taking that after the TE issue was resloved can you stop taking that liekt he rogaine, or is the aldactone for life??????
Also do you know of any of the side effecst being mood swings. liek crying alot. this is crazy if thats whats casueing it!!!!THANKS

also


 

guest
Posted on Thursday, April 08, 2004 - 02:18 pm:   Edit Post Delete Post

I hate to say it, but if you are anything like me, crying alot is a side effect of your TE and losing your precious hair. I have been crying after every time I get in the shower to wash my hair for the past 2 months of this AWFUL TE....
i would call it depression caused by losing your hair
 

elayne
Posted on Thursday, April 08, 2004 - 02:45 pm:   Edit Post Delete Post

Well thanks so much for your response! If you want my email, i could really use someone to talk to about this whole thing. I really think that has alot to do wiht it.I had really long pretty hair now it looks like well i dont know what,!I am afraid to wash it and afraid to even comb it.the only time i feel normal anymore is wearign a ball cap/ then i hate those casue they arent me! anyhow.thanks for the email.and liek i said here is my email if you want to write me ...i would welcome the company and advcie or give any i have, would like to knwo your story too.,,,,Elanye......still wating on toms any of the aldactone thouhg

 

ELAYNE
Posted on Thursday, April 08, 2004 - 05:26 pm:   Edit Post Delete Post

tOM UNFORTUNETLY FOR YOU i DO HAVE ONE MOR daily QUESTION FOR YOU...INCLUDED IN MY UPPER EMIAL ABOUT THE ALDCTONE..IS IT SAFE A T ALL. TO GET WHAT IS CALLED A FILLER COLOR IN MY HAIR.YOU MAY NOT KNOW WOMEN HAIR COLORS ECT.USUSLALY I GET IT HIGHLIGHTEDED BLOND AT THE ROOTS. WITH MY NATURAL BROWN UNDER. WLEL THE GIRL THAT HAS DONE MY HAIR THE PAST 15YRS SAID WE COULD DO WHAT IS JUST CLALED THE FILLER, WHERE ITS LIKE DYING IT TO MY NTURAL COLOR not TOUCHING THE ROOTS.ONLY COVERING THE BLOND THATS LEFT..????ANY IDEAS? OR CAN YOU DO ANY COLOR WIHT ROAGINE USE?
 

Tom Hagerty
Posted on Friday, April 09, 2004 - 08:54 am:   Edit Post Delete Post

Elayne:

The Guest gave you a good answer about mood swings. People (and not just women) who are losing their hair often have mood swings. To many people, hair is a symbol of youth. When they see their hair vanishing, they feel their youth is vanishing. This is not good for anyone's mood.

Even though I know something about Spironolactone (Aldactone) I don't want to give you any advice on how to use it. This would not be responsible. Only a doctor should give you advice on this.

No matter how much experience your hair stylist has, sometimes it might not be wise to follow her advice on coloring your hair. I know nothing about coloring hair, but I do know that some women with delicate hair or hair in stages of TE have experienced severe hair loss after letting a stylist do what she's paid to do.

But I can't give you any sound advice on this either. I wish you'd go to the library and take a look at Paula Begoun's Don't Go Shopping for Hair Care Products Without Me. You'll get some honest advice from this woman about shampoos, hair coloring, and hair care in general.
 

maryland
Posted on Friday, April 09, 2004 - 09:40 am:   Edit Post Delete Post

Hi again elayne-
I am the one who gave you the 'advice'about the crying. after reading all your posts, we sound pretty similar. I am 29, soon to be 30 too, and i get blonde highlights on my naturally blonde, but now very dark dirty blonde hair. I had the exact same question as you, because 3ish months into this awful horrendous TE, I am really now in need for my blonde highlight touchup, and my scraggly thin 1/2 reduced hair (from the start, before TE, i already have awfully fine, thin hair by nature...then came TE...lucky me,
right :-( so anyway, my point is that keeping it blonde and at least the color looking 1/2 decent makes me feel better at least, but now, if i can't even do this, i think i will want to hide every day...god this is awful...but I think tom's advice is true, although I havent' seen a lick of new growth yet, i am still falling out heavily, I dont' think it's the best idea to put my hair through any damage. But I have got to figure somehting out, because my hair is major roots, and dirty dishwater. HELP. please let me know if you find anything out. WE are also alike in that I suffer major migraines/headaches too, that's why im in this mess in the first place (i initially posted under Female pattern baldness, 29yr old with severe TE from low dose beta blocker, if you want to read my post).
I didn't see your email in the above post???
hope you get some answers...i am just trying to be positive and wait it out. tonight is shower hairwash night, so I am guessing that tonight's not going to be a happy night...
























 

elayne
Posted on Friday, April 09, 2004 - 02:01 pm:   Edit Post Delete Post

Hi and thanks to TOm first... I will TRY not to do anyting color wise even thoguh ist making me nuts. even though funky color hair is better than no whair.l you have been so helpful and i thank you so much for all you quick replies...!!! Ill let ay knwo any progress and thanks so much agian!!!!!!
 

ELAYNE
Posted on Friday, April 09, 2004 - 02:31 pm:   Edit Post Delete Post

Hi Maryland... i assume thats where you are form not your name:} heres my email. DENNIS@FIRSTSAGA.COM or jerohler@hotmail.com.... girl we sound liek we have such the similar case... iTS nice to knwo im not alone. i dont wish this on anyone but the comfort of knowing you arent alone is helpful!!!!!Its does sound so similar. have you gotten ride of the headaCHES>? no lucK there wiht me!tHE HAIR DRESSER LADY SAID THIS FILLER STUFF THEY PUT ON IS ONLY A TEMPORARY FILLER, AND YOU DONT PUT IT ON THE ROOTS AT ALL JUST COVERS THE CRUMMY BLOND I NOW HAVE..IN OTHER WORDS, ITS WOULD BE BACK TO MY NATURAL KINDA PUKY COLOR, BUT ALL ONE COLOR AGAIN, THEN WHEN IT GROWS THEN DO THE HIGHLIGHTS. MAYBE YOU COULD TRY THAT..>? I DONT KNWO I MAY WAIT A COUPLE OF MONTHS. JUST TO BE A LITTEL SAFER. EVEN THOUGH i WOULD LIEKTO PUT A BAG OVER MY HEAD!!!:} ONE WARNING IF YOU DO USE ROGAIN IT CASUES DANRUFF, BUT I WOULD RATHER HAVE THAN NO HAIR!!! SO HANG IN THERE. SO i KNOW WHAT YA MEAN ,,SHOWER NIGHT.great!! HOW MANY WOULD YOU SAY FALL OUT A DAY.i WOULD SAY MINE IS AT LEAST. 10 15 HAIRS EVERY TIME I RUN MY HANDS THROUGH IT. I MAY NOT HAVE ANY LEFT COME SUMMER. I PRAY YOURS STOPS TOO!!!! YOU REALY CAN WRITE MY EMAIL IF YA HAVE ANY DESIRE TOO. IMAY obviously NOT HAVE THE ANSWERS, BUT I CAN BE SOEM MORAL SUPPORT. ESPECIALLY SINCE I HAVE BEEN DEALING WIHT THIS SINCE sept! REALLY TRY THE ROGAINE. !!IT CANT HURT. THE DERM TOLD ME TO USE THE MENS WONT HURT AYTHING AND IS MORE USELFUL. ALSO, I HAVE ONLY BEEN USING IT ONCE A DAY TT NIGHT CASUE ITS SOOOO GREEASY....... ANYHOW KEEP IN TOUCH.! GOOD TO HEAR FROM YA... ELAYNE

 

elayne
Posted on Tuesday, April 20, 2004 - 07:25 pm:   Edit Post Delete Post

tom, Elayne again...hey I was readign alot of the telogen effluvium messages on one of your other discussion pages and most of them you suggested NO rogain for TE becasue they would have to use it for LIFE...You had mentioned soemthign different to me earlier. I was just curiuos which one was correct. i stated using it , but will STOP if you think other wise....thanks again
 

Tom Hagerty
Posted on Wednesday, April 21, 2004 - 06:57 am:   Edit Post Delete Post

Elayne:

Some dermatologists recommend Rogaine to speed up the recovery from TE. If you use Rogaine for this purpose you don't have to continue with it when your hair grows back. People who use Rogaine for male and female pattern hair loss have to use it for the rest of their lives if they want to maintain the growth that Rogaine possibly stimulated.
 

elayne
Posted on Wednesday, April 21, 2004 - 12:14 pm:   Edit Post Delete Post

ok thanks again!!!!!!
 

ELayne
Posted on Thursday, April 29, 2004 - 08:10 am:   Edit Post Delete Post

Tom help im still so confused!! went to another Derm yesterday....he was NO help! To make a long story short. he said well the meds you were taking COULD have been it but doubtful...ie ativan xanax ect my hair is still falling out alot ...i would say i have about half there now. I know you said it can take months for hair to stop once you stop the trigger....Well,,,, this guy said it is TE, as i knew, but he said im kinda concerned aboutthe possiblity of male baldness as well.??HUH??? he was leaving the room wehn he was saying this and wouldnt STOP to explain. he said soem thing about miniaturization. ? in other words concered about short hairs. ? im confused. how could i have both, and soemhow in my mind i doubt its anything other than TE. how could a women have male baldness anyhow. he was wierd!!!any ideas?????????i have no gentetics of males or females wahtso ever going bald a t all in my family so i really doubt his diagnosis! maybe he hasnt seen many people loose there hair with drug triggers and it looks differnt to him?cant TE also have long hairs falling out and short hairs at the same time??
I was also told by my OB and my dr that i needed to be on soemthing liek Zolft. i really am freaking about all this whcih i know is making it that much worse!! but since i have been this way for a couple of yrs maybe they are right.I hate those drugs and their sideffcts.If i knew it wasnt goign to casue more damage to my hair, at this point i would consider it ..thats how this whole thing has made me!!!what do you think?????I trust your judgement WAY more than these Derms i have seen:{would takign another medication for the depression trigger it even more since its already doignthe TE??
sorry for all the questions AGAIN>>>this has just got me so upset and these drs.i swear i dont knwo where they learned from.SO inconsiderate and have no compassion whatso ever! should have made sure it was female!!!anyhow thanks Tom.....Also, does perhaps taking a very very low dose of antidepressant or anxiety meds keep up the trigger??i think i was takign toooo much last year is why all this happened...
 

elayne
Posted on Thursday, April 29, 2004 - 08:26 pm:   Edit Post Delete Post

Tom, sorry to bother you AGAIN before you even have time to answer.... i wanted to change a few of the questions. i still had the above medcation question.... Plus...i have been sitting hear in tears. OH YEAH AGAIN>..... i read alot about that androgenetic alopecia and now am really frantic. I told you that the other dr yesterday had mentioned that as a possibility with the Telogen..i now understnad some of WHY... the hairs that are coming back on the sides were what i lost first on the sides of my temple and head last year has been growing back al little.So i thought. he said they were all fine hairs. thus the concern of miniturization. ok.... now what?he said there was no way to test for it .. and i would just have to wait a couple of years, use the rogaine and SEE WHAT HAPPENS> I was more comfortable with the TE diagnosis. at least i knew i had a chance. so is there any other reaosn the hairs would be fine hairs. maybe becasue i just stopped all the meds last month, the hair came back in a TE phase or soemthing?? perhaps???he wouldnt listen to all the mds i was on. anyhow... my main thing is, isnt this gentic??? absolutley no one(male or female) even my 80 some yr old grandparents had NO baldness ,,,parents dont. no one.so that would bring me soem hope that his concern is wrong. im still using the rogain, but as he stated if it is AA then im stuck with the rogaine for life which i guess if that meant not being complety bald so be it.. anyhow... i am sorry for the long email above before i read some on this possible condition. why arent there any testS to be sure?Is this soley genetic? and what else would cause soem fine hairs growing? Still resluts of meds? thanks alot TOm.......Elayne
 

Tom Hagerty
Posted on Friday, April 30, 2004 - 03:20 pm:   Edit Post Delete Post

Elayne:

Dermatologists find it difficult to differentiate between telogen effluvium and androgenetic alopecia in the early stages of these forms of hair loss. You may have TE triggered by medications and other things. If so, the fine hairs that are growing in now may be what are called intermediate hairs. In subsequent hair cycles the follicles might get larger and produce more robust hairs.

But there are never any certain answers for hair loss problems that will reassure you. Telogen effluvium can morph into androgenetic alopecia or even chronic TE. Or of course you may just get back all your hair in six months.

I'm not going to touch the genetic issue because this is too complex. But from what you wrote about your extended family, I suspect you have TE pure and simple.
 

elayne
Posted on Friday, April 30, 2004 - 04:47 pm:   Edit Post Delete Post

thanks TOm...! of course you know me...im gonna ask until Im blue in the face... How can Te MORPH into AA??im confused. so as most people they have never actuallly analized hair growth and studied their head, so, even with TE, the fine hairs can come in first...?Then what? fall out again and perhaps regrow stronger fuller hair?
one further thing>>.. Can the drugs or horrible lack of diet ect etc last year casue hair follice DAMAGE whcih could give me the same growth as the AA>?? or can damage actuallly be permanet from those two things., and or will it ALL FALL OUT if there is damage...???????????sorry for allthe questions, liek i said 10 times your sight is the bets and most informative and so are you...even if ou dont have all the answers, you at least TRY!!:}thanks TOM!p.s. YES I have become quit obssesed with this!!
 

Tom Hagerty
Posted on Saturday, May 01, 2004 - 10:10 am:   Edit Post Delete Post

Elayne:

I don't like to lay a heavy reading assignment on anyone, but I think you should carefully study "The three stages of the hair cycle" that is on my Male Pattern Baldness page. If you understand the hair cycle you'll understand many of the questions that you're concerned with.

For example, you'll see why fine hair doesn't change in midstream to thick hair or vice versa. All changes take place in the early stages of the growing (anagen) stage. A short anagen stage is associated with TE. If this short anagen stage continues through many cycles, it could be an indication of androgenetic alopecia (AGA).

I don't think a "bad" diet or some medications over the last year could permanently damage your hair follicles and cause your hair to "ALL FALL OUT."
 

ELAYNE AGAIN!!
Posted on Monday, May 03, 2004 - 10:55 am:   Edit Post Delete Post

Hey TOm for some reason the message i wrote responding to yours yesterday, was not posted..if you get this twice sorry.....
i read the AA stuff.i am still thinkig it is gonna end up being CHRONIC TE ...... Considerign i just stopped meds last month.could it still be going on this heavily after 9/10 months ???Also. does chronic TE mean JUST THAT. it wont ever stop?? i will be BALD> I read some on the chronic but it didnt answer those questions. Does it lead to baldness?? DOes that mean for life? Do the intermediate hairs grow to begin with in TE as well as the AA?? also, if it is the meds, lack of eating last year, i suppose it can take months after the stopping of meds ect to stop the TE...what if its chronic?? I also know its still TE casue al the hairs still have that white bulb thing on the end.... the small hairs that fall out have that on it also.... Im still confused...i still have at least 100-150 a day. every time i run my hands through it i can get about 4 hairs or so... i know 100 or so is int he normal range, but not during TE correct? becasue the replacemnt hairs arent growing as rapidly as its falling out????? sorry for all the questions once agian.thanks again TOm!!!!!i did read the keritn .com site and all your sights... so im still a little confused with the above things...
 

elayne
Posted on Tuesday, May 04, 2004 - 07:25 am:   Edit Post Delete Post

also i read with TE and or AGa. that there is a constant allover tingling in the scalp.i have had that too, but thought it was form allthe many meds for 2 straigth yrs?? isnt that a sighn of chronic TE....? i suppose the ony thing for that also is Rogaine and Time??if you never hear form me again you will know i have passed out from pure exhaustion....my poor husband is so sick of hearing about hair. im trying to just deal with this, and man, yes., worse things than this go on in life for sure, but it still really sucks BIG TIME!!!:{
 

Tom Hagerty
Posted on Tuesday, May 04, 2004 - 12:15 pm:   Edit Post Delete Post

Elayne:

You've fired a barrage of questions. There's no way I can give you good answers for all those questions without losing some hair myself.

The tingling question - although dermatologists claim that you can't feel hair loss, many people who have telogen effluvium do feel a tingling sensation in their hair follicles. This could possibly be a subclinical inflammation - an inflammation that is barely detectable.

You can't concern yourself (or your husband) about every detail of hair loss. Just take care of your diet and your health in general - and stay away from medications you don't need. If you have TE, time (perhaps a year) and good health will probably restore your hair.
 

Sheila Brough
Posted on Friday, May 07, 2004 - 07:15 am:   Edit Post Delete Post

Elayne,
I can sense your mounting despair and can really empathise. I have had all the problems you have listed. It's difficult to say why my hairloss started, could be androgen activity, stress etc. I had acne alongside the hairloss (which strongly suggests androgen activity), but cos of stress that goes with it was prescribed minocin for acne, beta blocker for stress, cimetidine for oesophagitis (casued by the minocin it turns out)etc etc. Turns out all of those tablets cause hairloss. Great! You know what though - I took cytopretone acetate (contraceptive pill called Dianette in UK, or Diane). It is a powerful antiandrogen. ALL my hair grew back and my skin was great. I came off it for a break last year, as it does make you lose muscle tone,although I didnt really gain weight. My hair was fabulous, and I had more than I'd had originally.I'm going to have another dose of it now as my skin and hair are bad again. Before that - I had tried every lotion and potion going.
Get on it girl and good luck! xx
 

Sheila Brough
Posted on Friday, May 07, 2004 - 07:21 am:   Edit Post Delete Post

Elayne,
I should add that I also had every blood test from every sort of clinical specialist at the five star teaching hospital in Uk, and not one test showed any abnormality. Shows what they know. Also - I get the tingling/stinging. Weird indeed. But it did go away with the Dianette. I really hope it works for you, as it transformed my whole outlook on everything. I'm soooo glad I now have Dianette to resort to at these times, cos it means I no longer panic when it happens.It also seemed to take effect within a month or so.
Fingers crossed for you.
S
 

elayne
Posted on Friday, May 07, 2004 - 09:07 am:   Edit Post Delete Post

Hi Shiela .thanks so much for the advice...!! i will ask about that..!!!It was sweet of you to take the time to write me ..Im so glad at least on of us has found a resolution to this mess.There are toomany questions for even poor TOm to answer. ha and its so frustrating casue the DRs. REALly dont take it too serioulsy. by all menas its not thier hair.i dont think Derms, specialize in hair loss as much as there skin problems..... i also have bad ance off an on, but who knows that could just be stres too.. its all so confusing......thanks for the hope though..i will definetly ask about that!!!im glad your hair grew back wonderfully!!!This last DErm did a biopsy, i hope that can tell me soemthing when the results come back. im not to sure what all that tells you, but maybe it can tell soemthing!!! anyhow it was good to hear from you.thanks so much!! elayne!
 

sheila
Posted on Saturday, May 08, 2004 - 04:56 am:   Edit Post Delete Post

You're welcome!
Sounds like you may have found a derm that is taking your problem seriously.
I think the lesson is, whatever the medication, no system in our bodies works in isolation, and tablets affect not just the things they're meant to be affecting. I never ceased to be amazed at how many meds now admit hairloss as a side effect. There are a huge list of them on the internet if you do a quick search.Even Zantac (ranitidine) for stomach acid. Good grief. What hope is there eh.
I think that you should feel really hopeful that, as yours does sound like its drug related, it will clear up. My doctors NEVER took my suggestions as to it being due to the minocin seriously, and couldn't really see why I was making such a nuisance of myself, and diagnosed me with Chronic Fatigue. Ha - now on the minocin contraindications sheet, there is clear warning that it may cause hairloss and joint pain. Like an idiot, I actually believed them for years, that it couldnt be the minocin and took it again at Xmas. What d'ye know - joint pain, oesophagitis and hairloss. What a dork I am eh. Could have kicked myself when I read the enclosed leaflet that had added these horrible side effects.
At least I know I was right and that it will grow back.
Anyway - the dianette did make my hair grow back in like mad, having been cyclically falling out for about three years - it just stopped in its tracks and grew (phew). I really, really hope that if you can get it where you are that it solves your problems too.
Best wishes,
Sheila
 

elayne
Posted on Monday, May 10, 2004 - 04:32 pm:   Edit Post Delete Post

Hey back!! that Diane stuff my ob had never heardof and the derm said its only in Europe..is that true??tom are you aware of this too?? the pharmasist never heard of it either. AAAAHHH is there a similar BC pill that can solve the same prob??Do you know?? that would be great if ou did. this Derm said STay away form al Bc right now. UGh I cant win. maybe this biopsy will show somehting. I have my doubts though that it is anythign other than drug related..its so darn frustrating.!!!!!!! i really thank you for your advic.e and hope you grow all yorus bakc again withthe Diane again!!!!! :} Good luck and keep me posted alright!!! i erased your email on my email page by asccident so i have no way of leetting you know i write ya back!!!Thanks again!!Elayne
 

sheila
Posted on Tuesday, May 11, 2004 - 06:27 am:   Edit Post Delete Post

Hmm..thought that may be a problem. The active ingredient is cyproterone acetate. If you search the internet you will see it is the drug of choice for androgen related problems for women - eg hairy face,acne and hairloss. I can't believe that there is no similar BC pill that contains cyproterone acetate in the States. When you do a search you will find various websites, papers and discussion forums with doctors that indicate it really does work. Perhaps what puts people off is it is prescribed for hirsutism (hairiness in the wrong places on women due to androgen activity)which at first seems to be the opposite of what you want. But what it is does is block the activity of androgens, which is what causes the acne, hairy cheeks (if you have them!) and hairloss. I can't believe that Europe has something the states don't. Try the ob with the cyproterone acetate bit rather than the Diane35/Dianette thing...Good luck.
S
 

elayne
Posted on Thursday, May 13, 2004 - 07:37 am:   Edit Post Delete Post

Hey Tom.... question. the 5 percent rogaine has seemed to slow down the TE. quit a bit..for now anyhow. BUT ..I am starting to get soem lovely facial hair. I knew i would get that thin white hair, but im actually getting soem black upper lip hair and on my hnads and soem on my arms as well. i alwasy have hair on my arms but its blond not BLACK.AAAHHHHH getting alot of the blond hair on my cheeks and forhead as well. would you recomend stopping it? or would the womens 2percent be a good switch and keep it under control ???/ Im thrilled the TE seems to be tapering soem but i dont want to look like a hairy gorilla either.....if its not one thing its the next.....:} thanks TOm any suggestions.. and does the womens casue the same effects
 

elayne
Posted on Friday, May 14, 2004 - 07:45 am:   Edit Post Delete Post

me again, i was told yesterday from one of the Derms i have been to, that the biopsy they did came back showing female pattern hair loss. which doesnt make much sense, said it wasnt much hair in the telogen phase anymore. WELl. then the other DErm called and said my testosterone test he had doen showed high levels of testosterone.( i have to get more blood tests done) .....so if it is this pcos, or whatever is causing the high testoterone levels, once that is resloved, can the hair problem be reversed??? or is that permanent. could the biopsy have just shown hair loss, and they are assuming its FPB?? I SO darn confused its rediculous.......thanks TOm
 

Tom Hagerty
Posted on Friday, May 14, 2004 - 09:22 am:   Edit Post Delete Post

Elayne:

Did your doctor mention PCOS? Did he say that this might be causing high testosterone levels? I think right now you have to follow the instructions of your dermatologist. But I would also suggest reading about PCOS and related issues.

Sheila told you about Diane and Dianette (cyproterone acetate) that she gets in Europe. (You can get it in Canada too.) Diane especially is a powerful antiandrogen with potential side effects. Spironolactone has fewer side effects.

You have so many things to think about now. You have to be careful in your medical and health decisions. Well-meaning people on the Internet, and that includes me, can give you some advice, but I think you're at a stage where you'll have to rely on the professionals - the doctors.
 

elayne
Posted on Friday, May 14, 2004 - 10:01 am:   Edit Post Delete Post

well. thanks Tom.... now this derm said the test was soem new test and the levels were wrong on it so my testosterone was within normal range. but he would retest. This is getting crazier by the minute. now Im just stuck with the biopsy of the androgenetic alopecia... Cna that still have been triggered by the allll the many meds i only stopped recently like the benzos?i took those for at least two yrs daily... and would that casue a false biopsy?? maybe im trying to talk myself into a false biopsy, but i still think with all the amny many drugs i was taking it could casue it and i wonder if it cna be reversed?
 

elayne
Posted on Friday, May 14, 2004 - 08:45 pm:   Edit Post Delete Post

I cant believe i have become this obssesed,i have written at least 20 some messages to you...good grief. I apologize again, and i know advice from a professional seems liek the obviuos solution...Tom i have been to three derms and they have been so unconcerned.. I have learned so much from your sight and the sights you suggested i read.....I read soem more post just now...if this is indeed androgenetic alopecia started by telogen.....Can The AA ever be reversed or does that mean the hair follicles are dead/damaged...... i still think it was all the meds liek i said above like the benzos ..but NONE of the Drs are the least bit concerned wiht my history of migrains, medication after medication, alot of stress and lack of eating last year due to ALOT of factors...... anyhow i know all of them can trigger the TE.. Im still so confused.... could the meds have also caused the AA?it said on one sight that chemo drugs could do that. whos to say any of the others cant as well.?? SO DOES The diffused thinnig stop and does it lead to baldness...? no one seems to be able to answer me other than DONT WORRY , and so be it if you have to use rogaine for life. well, i guess if i do i do, but Im starting to look like a hairy man on my arms and face too. so how in the world can i use that for life. i guesss my main question is....are bopsies usually correct, can meds casue this, and can my hair be restored ....GOSH i am so hoping they are wrong and it all was the meds. sorry again for more questions TOm, you have just been a saving grace to me with this sight
 

Tom Hagerty
Posted on Saturday, May 15, 2004 - 11:21 am:   Edit Post Delete Post

Elayne:

Just a couple of things. You see now that Rogaine (minoxidil) does not have only topical properties; it has systemic properties too - it gets into your bloodstream. Hair on the arms and face of a man look OK, but on a woman that's a different story. You'll have to think seriously if you want to continue with Rogaine.

I know most dermatologists will not take the time to listen to you or pay much attention to your story - what may have triggered your hair loss. A dermatologist in Athens, Ohio, where I live, schedules his patients every 12 minutes. He's a very nice man. He gives samples of drugs to all his patients. But I feel that a person with a complex problem would get little benefit from a visit to him.

"it said on one sight that chemo drugs could do that" by that you meant trigger telogen effluvium. This may happen, but chemo drugs usually trigger anagen effluvium which makes 90% of the scalp hairs fall out temporarily. Antidepressant drugs and accutane, though, will trigger telogen effluvium occasionally.

These medications plus the bad diet you were on obviously messed you up. I hope you don't start taking more medications to un-mess youself up, no matter what the three doctors prescribe. You have to become your own best "dermatologist" and prescribe for yourself a healthful diet and a healthful style of life. If you have stress, which we all have at times, don't start taking the mood elevators. I wish I had something more helpful to say but I don't.
 

elayne
Posted on Saturday, May 15, 2004 - 12:11 pm:   Edit Post Delete Post

thanks again Tom.... i appreciate your answering back agian! So does the androgenetic alopecia mean a permanent thing?ie, if it was casued by drugs ect??? or with time, can that also cahnge??????ijust know its not genetic as i said... so can my hair follicles repair themselves if its nto a gentic casue? once i have been off of meds? im still confused.. i knwo the triggers can casue the TE but what about the AA? i have read so much on it and im still confused.If your answer is no to that question,that it wont repair itself with time, then if i DO stop the rogain, will i becoem toally bald from the AA?? it seems to be moving at a fast pass..... I dont seem to loose more than 75-100 hairs a day anymore though, Thus the major confusion....from what i read, AA is a slow process not soemthign that happens in 10 months?????Perhpas once i recover toally fromt he Te, if i do indeed have AA perhaps that can be masked for many more years ie im older?????is that possible?or is this soemthing since it did morph form TE to AA, it will remain ungrown..??HELP im still lost..
i also forgot to mention that i have ALWASY been a horrible horrible Dr pepper drinker. ie dialy... cna all that sugar other than the obvious that its not healthy casue AA?I also have alwasy been thin, howver i had 3 children, and a total of 7 miscarraiges. so my weight has alwasy fluctuated so rapidly, eithr due to not eating or pregnancy..ect etc et c. so ....cna all this permanently casue the AA? Im still not sure if AA is a totally permaent thing?, if it can be masked after i recover from TE, and if it leads to baldness? in other words my hair hasnt regrown formt he major TE episode yet> Will the diagnosis of Aa keep it from doign so? sorry i know more darn questions.. in other words once the Te recovers, will the Aakeep it form growing back>.........thanks
I knew there was soemthing i liked about you Tom. you are in ohio.. my grandparents who rasied me and will be celebrating82 yrs and 60 yrs together are form there.. they live in Fla now. :}
 

elayne
Posted on Saturday, May 15, 2004 - 12:15 pm:   Edit Post Delete Post

one more thing Tom...could i possibly have the anagen efluvium form all the meds, and the boipsy shows just massive hair loss?could they be worng. Im still talkign myself into that one!!! or if its anagen perhaps it looks like it to them
 

Tom Hagerty
Posted on Sunday, May 16, 2004 - 07:43 am:   Edit Post Delete Post

Elayne:

You and almost everyone suffering from hair loss will have many questions that can't be answered with certainty. There are many variables in hair loss problems - genetics, environmental factors, diet, stress, life style choices, age, general health status. In other words, you'll have to live with uncertainty. Many of your questions have no definitive answers.

1. "So does the androgenetic alopecia mean a permanent thing?" When the hair follicles die they can't be resurrected unless you believe in miracles. If men have been bald for ten or fifteen years, the follicles in the balding areas are probably dead. Women have a much better chance of recovering from pattern hair loss, though, because it's unusual for women's hair follicles to die.

2. "if it was casued by drugs ect??? or with time, can that also cahnge?????" Once the drugs are out of your system you would think that your hair follicles would return to normal in short order. It doesn't usually happen that way. Hair follicles sometimes get into the habit of "short cycling." They stay for shorter periods of time in the growing stage of the hair cycle. The probability is that your hair follicles will rebound if you engage in a healthy life style (good diet, no drugs), but there is no guarantee of this.

3. "i also forgot to mention that i have ALWASY been a horrible horrible Dr pepper drinker." Bad diet usually has no consequences for your hair when you're a teenager, but as you get older, bad dietary habits start to take their toll - bad hair, bad skin, even bad mood.

4. "I also have alwasy been thin, howver i had 3 children, and a total of 7 miscarraiges. so my weight has alwasy fluctuated so rapidly..." You're at a stage in life now where this is in the past. You can keep your body weight stable, and perhaps your hormone levels too. It's changing hormone levels, and drastically changing body weight that have an effect on follicle cycles.

5. "in other words my hair hasnt regrown form the major TE episode yet. Will the diagnosis of AA keep it from doin so?" There's a much higher probability of recovery from telogen effluvium than from androgenetic alopecia. But dermatologists have a hard time making a differential diagnosis. In the early stages of hair loss TE and AGA often look the same.

 

elayne
Posted on Sunday, May 16, 2004 - 09:21 am:   Edit Post Delete Post

wow, sorry that probably took you all mornign to answer. but GEEZ i appreciate your answering them.... I feel a little better .really. just even to know there is hope.HELPS>>>>>>>>>>> you are the greatest TOm.thanks.Im gonna TRY hard as it may be to have abetter attidude. becasue even liek my husband keeps reminding me. there are way more tragic things in life as we all know, and ..i still have a life to live wiht a wonderful husband, kids and grandparents....
**** hopefully last major quesiton for awhile...... even with the biopsy of Adrogentetic alopecia, its possible to recover and not lead to baldness correct?so in other words its not a DEATH SENTENCE for hair..even if i stopped the rogaine>>>??you were saying on your last sentence that its hard to diagnos between AA and TE in early stages....... DOes that mean even with the biopsy diagnosis? in other words its hard for the pathologist to differentiate with certanty as well?they said AA but im still haivng trouble believing that not becasue of denial, just becasue i told you earlier even my great grnadparents and EVERYONE including men in my family had full heads of hair at 80.so anyhow.... can a biopsy be hard to be 100 percent with for a pathologist... Im still thinkig major TE!
 

elayne hopefully for the last time
Posted on Sunday, May 16, 2004 - 02:40 pm:   Edit Post Delete Post

i forgot to mention i got a good laugh from you quoting me.. you even quoted my typing errors. thats fuuny Tom!:}anyhow.. hope you can help with the last question above...i was under the asumption that soemone diagnosed with AA...that is was a permanent thing with no regrowth or rebound hope, only with perhaps rogaine. that DUMB derm that did the biopsy told me, forget IT>.youll just have to live wiht no hair for life. whatever.!!!!!!!i was soo mad.anyhow..at least there is hope. so liek i asked, wwith a biopsy, they can have trouble with TE or AA differntiating?
 

Tom Hagerty
Posted on Monday, May 17, 2004 - 07:11 am:   Edit Post Delete Post

Elayne:

I hope you don't bug your husband too much about your hair problems. Just think how you'd feel if you had to put up with complaints from him about his hair loss. You'd throw him out of the house.

Biopsies aren't 100% accurate but they are pretty good. Women don't usually get the kind of androgenetic alopecia that men get with the characteristic loss of the frontal hair line. Female baldness is usually characterized by diffuse thinning all over the scalp - no pattern.

My feeling is that if you got into a healthful life style, your hair would become healthy too. You were on a ton of medications, childbirth, miscarriages, horrible diet, stress. If you settle on a new program focusing on the good things in your life without the aid of Dr. Pepper and his staff, your hair might bounce back. When this happens, write a testimonial and I'll post it.
 

elayne the pain!
Posted on Wednesday, May 19, 2004 - 03:22 pm:   Edit Post Delete Post

thank Tom. no, I try not to bug my husband too. much.he is my best friend though and we share ALL, so its hard .... he is the most understanding person as far as men go haha..there is...
anyhow i had a quesiotn.....yasmine? my ob gave me soem samples of that and suggested it for the hirtrism(SP) from the rogaine ect..is this a comporable one to the Diaentte..which we can not get here at all. except over the net. or do you know of ANy reputable on line ordering firms i could order the dianette from. or is the spri just as effectivve>>??? i have to go back on Monday to see about getting some further tets then BEG for the srpiro..since i willshow this Derm the biopsy report of AA, he shouldnt hesitate in giving me any ...since now its not just Te dont ya think> well anyhow I will wait on the yasmine until i can see about getting sprior..... any suggestions....thanks alot again and again Im still so darn confused about he AA. i have read alot, and most says its permanent some say you cna rebound. other say its defently genetic and give it up... Im lost..bu you already knew that>?:{oh,. once the Te starts to recover completely..i,e. grow!, will teh AA keep it form getting full length .thats why im confused.
 

Tom Hagerty
Posted on Thursday, May 20, 2004 - 12:33 pm:   Edit Post Delete Post

Elayne:

I don't think you should pay too much attention to people (including me) on the Internet who give you advice on drugs that contain cyproterone acetate like Dianette from Schering. These drugs have the potential for serious side effects.

Self medication is not alway a good idea. When you're desperate, and I gather from your messages that you have some desperation, there is that urge to find the perfect pill that will solve the problem. I'm not going to encourage you in this.
 

elayne
Posted on Saturday, May 22, 2004 - 03:01 pm:   Edit Post Delete Post

i aprreciate your honesty.. i was just wonderign cause my ob wanted me on yasmine to regulate cycles, and the derm suggested aldactone.if i try it again, and bleeding deos accure is that one of the sideeffects that usualy goes away wiht treatement . or is the birth contol and aldactone too much at once. he assumed me yamine doesnt casue hair loss. again confusion has set in!
 

lucy
Posted on Friday, July 02, 2004 - 01:49 am:   Edit Post Delete Post

Just wanted to tell the people out there who want to use adalactone, also known as Spironolactone. I use it to slow down facial hair, so I am assuming if it blocks androgen hormones, and slows down hair growth, it probably won't help hair to grow. Anyhow, it is a diuretic, or used for high blood pressure, so why be afraid to use it. One comment on fine hair. For awhile my hair seemed to be falling out by the handfuls and had split ends galore. First off, I started using vitamin b-complex, plus 500 mg of rose hips vitamin c. My split ends are not anywhere near as bad, and my hair has stopped falling out. Maybe coincidental? Worth a try, can't hurt.
 

Harry Marleno
Posted on Monday, July 19, 2004 - 06:14 pm:   Edit Post Delete Post

Has anyone else had aa problem with hairloss by using the antidepressant welbutrin? If so, any signs of regrowth?
 

Harry Marleno
Posted on Monday, July 19, 2004 - 06:14 pm:   Edit Post Delete Post

OK, first I would like to know is How do you get a password and open an account on here?
Next thing, I wanted to add for a few people who left some messages on this board about drug use and hair loss, I am not a professional on this topic, but i can tell you, especially for the guy with the percocet and other opiate use drugs. I am only 29 years old, I been abusing drugs most of my life, started out with percocet like your using, i got up to taking 30 percocets at a time, then i started oxycontins when they came out, then finally heroin, for years to get off the heroin, I was using crystal meth, anyway, i can go on and on, what i am getting to is, i never lost any hair, always had thick full hair.
Anyway, 4 weeks ago I go into drug rehab and they requested the drug Welbutrin, I been on it 4 weeks now, 2 weeks ago I went to get a haircut, hairdresser was saying how nice my hair was, thick and full, 4 days ago, I look up the drug on the internet to learn more about it, and i see alot of people complaining about hair loss, note that this side effect was not on the list of side effects that came with this drug. I look in the mirror, and how i did not notice this earlier, i just dont know, i have about 6 bald spots the size of a quarter on my head and thinning in the front. I called many doctors and they all told me it was not a side effect, until i got a hold of one that looked more into it for me, and said , yes it is a side effect so extremely rare, its next to nil. Anyone who knows anything about this, Please write your comments, the main thing i want to know is, does it grow back? I stopped the drug immediately after noticing this in the mirror. I went back to the hairdresser who did my hair couple weeks ago and asked her if she noticed any spotting like i have now, she told me absolutely not, she would have noticed. Please help me out with this, any info would be helpful. I finally get my act together and off the drugs for the first time in my life, and now this!! I am just too good looking to lose my hair! Please, any info or comments would be helpful! I appreciate anything on this. Also, if you could, please email me any info you have at "TheMagicStick551@aol.com" Thanks again!
 

Tom Hagerty
Posted on Tuesday, July 20, 2004 - 01:49 pm:   Edit Post Delete Post

Harry M:

This is an open discussion forum. You need no username or password. If people want to contact you to answer your important questions, you've given them the means.
 

Anonymous
Posted on Friday, March 18, 2005 - 02:13 pm:   Edit Post Delete Post

My name is Paige and I have alopecia, no I dont like it I take alot of meds. but no being bald doest bother me.god does things for a reason and if im willing to deal with it, those grownups out there can to. I no its hard and confusing believe me being about 5 or 6 dealing with it.But like I said everything is done for planty or verious reasons.But no matter what god love us all no matter what he puts us through.
 

Tom Hagerty
Posted on Tuesday, May 31, 2005 - 01:25 pm:   Edit Post Delete Post

This page is getting too long - too much scrolling. Please post messages on this topic here: Drug Induced Hair Loss? HELP, page 2.