| Author | Message | ||
     momtothree New member Username: Hairtodaygonetomorrow Post Number: 5 Registered: 09-2006 |
With hair loss? Im not talking just creepy crawlies but severe acid burn and redness? My hair is coming out fast and the pain is unbearable. I had every test that is normal. I mean every one. All the docs toss me to the curb. Im just beside myself. Im female 37 and this started 6 mos ago out of no where. I've been reading for months about AGA and sore pain but this is not just sore, this is on fire. So I wonder if anyone else has it this extreme? I see a hair specialist the end of the week. My face also burns as well. Sometimes i feel like someone is using my scalp as a pin cushion also. I read all the burning scalp stuff, its not anxiety as its pink.. I would love to hear from anyone with this syndrome along with HL. I feel its autoimmune in nature. | ||
| Gina W New member Username: Ginawat Post Number: 9 Registered: 09-2006 |
momtothree... I have the same pain w/my hairloss. Mine started 6 months ago also...although the whole problem of hairloss has been on and off for several years - some times worse than others. I believe it might be CTE - but I can't figure out why. Please let us know what the hair specialist says... Thanks | ||
| momtothree New member Username: Hairtodaygonetomorrow Post Number: 10 Registered: 09-2006 |
Gina you have the same pain? Goodness its good to hear someone else having this. I mean not good but at least I dont feel so alone. Its Like someone poured battery acid on my head, it wakes me up at night etc. Its aweful I read about burning scalp syndrome and how anxiety can be a factor. Do you think that might be your case? I know its not mine because I dont think anxiety could cause such horrific pain and redness. I will let you know what the doc says and you can email me anytime | ||
| Gina W New member Username: Ginawat Post Number: 11 Registered: 09-2006 |
M23, Yes - I have bouts of scalp pain along with inflammation w/my hairloss. When my scalp is at its worst (when I shed the most) the pain is worse and also wakes me out of a sleep. My nephew (15 years old) also has seb derm and although he has tons of hair complains of a sore scalp as well. Do you have seborrheic dermatitis, too? Does your scalp produce too much sebum - that often cause odor and flaking? I use Nizoral 1% and it helps some - but at different times (and for no known reason) I get a flare up that nothing can touch. I have been having a "good" scalp/hair week this week - less shedding, flaking, pain, itching, etc - but I never get too happy because I know it will return and sometimes with a vengence. Gina | ||
| momtothree New member Username: Hairtodaygonetomorrow Post Number: 11 Registered: 09-2006 |
Gina, I dont think I have dermatitis, my scalp is not oily or flaky. My doctor that I saw said many patients who come in complain of odd scalp pain. But she said I do not have Androgenic Alopecia because basically wmen with burning heads do not have that, AGA might have an itch but not burning that wakes us up. her thought more auto-immune like Fibromyalgia. Sending me to a Rhumatologist. I got cortizone injections there and today I may be feeling some relief in the back of my scalp. very odd indeed, my scalp was also pink at the visit and the doctor noted that. | ||
| momtothree New member Username: Hairtodaygonetomorrow Post Number: 12 Registered: 09-2006 |
Gina are you fatigues alot and have sore joints also? I seem to not be able to ever sleep and my hips hurt bad along with I get a hive on my lip that nobody understands | ||
| Gina W New member Username: Ginawat Post Number: 16 Registered: 09-2006 |
No fatigue or joint pain here. Just lots of shedding and thinning, flaky scalp, itching and pain. I have to wash my hair each day or the odor from the sebum builds up. I have been eating lots of red meat and wonder if I have found my issue (low iron stores) or if I am once again going to work on the wrong thing for months w/no change. Did your doc test you for thyroid? Iron? Anything? |
