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Tom Hagerty
Posted on Wednesday, September 29, 2004 - 09:19 am:   Edit Post Delete Post

Post new messages on this subject here.
 

Paul Zender
Posted on Wednesday, September 29, 2004 - 10:23 pm:   Edit Post Delete Post

Tom,
Your suggestions regarding scalp exercises are worth a try in an effort to relieve taughtness of the scalp, although I seriously doubt that they stimulate or sustain hair growth. If your predestined to lose your hair through heredity, I doubt there is any known treatment that would make a hill of beans of difference in changing the final end result, being "Baldness".

A lot of people including myself get fooled by the fallout and regrowth of vellus hairs that tend to grow and fall out, and regrow again before making a final departure all together... In spite of drugs like Propecia and Rogaine, there are still plenty of YOUNG balding men out there that have already lost the battle. Some have opted to shave their heads and forget it. Good for them!

I suspect that scalp athophy is the final end result of the scalp stretching to fill spaces that were once occupied by thousands of now miniaturized hair folicles. It's easy to see where the frontal hairline once was on a man's head when he wrinkles his forehead. The scalp does not move with the forehead, and it creates a clear visable line where the hairline once was.

The problematic question that noone can seem to answer is why some people aren't aware of scalp atrophy when it is obvious they have it, and why others like myself are constantly bothered with uncomfortable sensations of taughtness and inflammation.

On a different note, I've seen posts where people have been offered tricylic antidepressants for symptoms of discomfort, and i've been down that road and can say that it is a sad attempt by Dermatologists to numb the patient with highly sedating drugs like Elavil. I'm aware that antidepressants are used for unexplianed pain and are sometimes helpful, but they do nothing to treat the underlying disorder and are extremely difficult to adjust to. Unfortunately most people have to stop them.
 

jayne d-c
Posted on Wednesday, September 29, 2004 - 10:25 pm:   Edit Post Delete Post

sorry, i have read all of the above letters and your answers. i know i must have missed the parts where you mentioned the differences in message and exercise. i have learned a great deal from your commments that i did not know.i did not mean to say that all drugs were meant to be temporary, tho some that you mentioned are, b/c people can do the hard work and get off of blood pressure Rx. i think that i should have directed that comment more specifically to the tricyclic antidep. sorry i took up so much room.thanks and bye

 

Tom Hagerty
Posted on Thursday, September 30, 2004 - 09:00 am:   Edit Post Delete Post

Paul Zender:

I wonder if this statement you make is based on your own lack of success in finding an effective treatment: "If you're predestined to lose your hair through heredity, I doubt there is any known treatment that would make a hill of beans of difference in changing the final end result, being Baldness."

Perhaps I'm deluded, but I never was a big believer in "predestination" of any kind. I'm now 73 years old and still have thick, naturally dark hair. All my male relatives were suffering from hair loss in their early to late thirties. Maybe they were predestined, but I wasn't - or maybe the scalp exercise plus good diet and a healthy life style made the difference. One thing is for sure - my scalp exercise program lacks scientific validity because it is based on personal experience and personal anecdote. To me it makes some physiological sense, though, if I bend the corners a little and tweak the edges.
 

Anonymous
Posted on Thursday, September 30, 2004 - 02:13 pm:   Edit Post Delete Post

Mr. Hagerty you said you scalp exercise program lacks scientific validity because it is based on personal experience. How could you be promoting such a program if it is not valid? People might be getting their hopes up and then be disappointed. Sorry for the negative comment.
 

Michael
Posted on Friday, October 01, 2004 - 09:39 am:   Edit Post Delete Post

He didnt say that his program isnt valid. He said that the scalp exercise worked for him, and thats why he wanted to share this information with us. If we then try it out and it works for alot of us too, then you have your scientific validity

I just hope that it really was the scalp exercise that made such a difference in his hair growth.

Mr. Hagerty, have you talked to anyone that conducts real experiment on hairgrowth? If you conctact some of the "real scientist" and direct them to this page maybe they'll think of experimenting with the scalp exercise.
 

Tom Hagerty
Posted on Saturday, October 02, 2004 - 09:39 am:   Edit Post Delete Post

Michael:

"Real scientists" would not be interested in assessing the validity of the scalp exercise program. There is no money to be made from instruction on how to do the scalp exercise. Real scientists work for pharmaceutical firms and in universities. They are more interested in the chemical approach or in the tissue engineering approach (cloning) to hair loss. These are much more challenging activities than a prosaic analysis of someone moving his scalp back and forth.

I did say the the SE program is not scientifically valid for the reasons given. If I were selling snake oil, I never would make such a statement though. If one is selling a bogus product or regimen, positive statements are the rule. Make bold claims and give a lot of statistics - "98.6 percent of our clients have regrown their hair after six months on our excellent snake oil - money back guarantee if you are not satisfied." Now that's how to sell a product.
 

Michael
Posted on Saturday, October 02, 2004 - 08:10 pm:   Edit Post Delete Post

Well if the scalp exercise work they can still make money from it by making us buy some machine that stimulates the scalp muscels and just say that its the best way to do it
 

Anonymous
Posted on Sunday, October 03, 2004 - 10:04 pm:   Edit Post Delete Post

Just like exercise videos, I think that money can be made from scalp exercise videos. I hope that it does work, actually! Have you stories to tell in the form of anecdotes or anything that give testimony to the fact that this has worked for someone besides yourself, Mr. Haggerty?
 

Tom Hagerty
Posted on Monday, October 04, 2004 - 04:25 pm:   Edit Post Delete Post

Anonymous:

Read the Testimonials. There are no anecdotes here telling of overnight success, but some people have made moderate gains.
 

Ernestine Penland
Posted on Friday, June 03, 2005 - 08:23 am:   Edit Post Delete Post

There can be life after hair loss and scalp pain. Like many of you on this site, my hair has always been very thick. The first thing that I noticed a couple of years ago was lots of what I thought were "broken" hairs in a vacation picture we had taken. The next time I washed my hair, I was literally stunned by the giant hairball in the bathtub. This hair loss escalated and continued for months. I developed soreness and burning in the scalp--particularly at the crown.
The burning was sometimes almost unbearable.

At some point, my daughter starting having the very same symptoms. For obvious reasons, I became really frightened that we were a) being exposed to some toxic substance or b) had gotten ringworm or something in the scalp since my daughter had worked in an animal shelter for the summer. I also wondered about our diet since we both tend to have low iron.

Either way, I became totally freaked out to the point that I couldn't really concentrate on anything other than this issue. I went to three different dermatologists who were absolutely no help at all and did tend to act as though I was imagining things.

A very nice doctor on a web site such as this corresponded with me for a week or so. He told me to go to my doctor and ask for 20 mg. doxepin to be taken nightly. It wasn't easy to convince the doctor to give me this drug; however, within two weeks things started to get better. Each time I washed my hair, there were fewer strands in the tub. The old texture started coming back too.

There was a period where my hair looked pretty awful due to all of the new hair coming in and sticking straight up. I didn't care. I still take the doxepin and both mine and my daughter's problems have completely cleared up. I haven't had any symptoms in four months!

Good luck and God bless. Only someone who has gone through this can understand the level of anxiety attached to it.

Ernestine

 

Tom Hagerty
Posted on Friday, June 03, 2005 - 12:09 pm:   Edit Post Delete Post

Ernestine:

Is this some kind of bad joke? Doxepin sold under the brand names Adapin or Sinequan is an antidepressant used to treat anxiety. Antidepressants can cause hair loss, not help the condition.

How old is your daughter? This is from a respected medical website -

"Studies have shown that children and teenagers who take antidepressants ('mood elevators') such as doxepin are more likely to think about harming or killing themselves or to plan or try to do so than children who do not take antidepressants. Children younger than 18 years of age should not normally take doxepin."

Your message on this website is chilling.
 

Anonymous
Posted on Sunday, September 04, 2005 - 03:46 pm:   Edit Post Delete Post

I am a 57 year old female who over six years ago began experiencing tingling sensations, along with burning and a feeling of having my hair pulled. These sensations were absolutely physical and not mental, and my thick, luxurious, hair began to change texture and fall out. I was nearly suicidal. One area continued to burn, on and off over the past few years, and it was the same area with thinner, feather-like hair. The other side, was thicker and of a more normal texture. I still have hair, but it continues to thin and with a recent bout of burning scalp, and now scalp pin prick pain on the "good side", I am in another state of depression, anxiety, and panic. Nothing has ever worked over the years----Any more women to comment?
 

Anonymous User
Posted on Tuesday, October 25, 2005 - 03:22 pm:   Edit Post Delete Post

Actually, I too have heard of taking doxepin for the scalp pain and hair loss. I think the way it is helping some patients is that doxepin actually has VERY strong antihistamine properties. It's suppose to be 600 or more times stronger than any other antihistamine on the market. So, as for the lady and her daughter that had success with it's use, perhaps they are experiencing some type of allergic reaction and this is helping to calm that reaction. Also, the dose that they are using are low enough that shouldn't effect their moods. Low doses of antidepressants are also used as an alternative to muscle relaxers. So, if they have a lot of tension in the scalp, neck and shoulder area, the doxepin is helping to relieve that tention so the body can once again deliver proper blood supply. Not a doctor and I personally don't believe in taking drugs but just wanted to share my research on this. My doctor actually prescribed this to me a few years ago for burning scalp but I was too chicken to try it...waiting until after my husband and I have children.
 

joe s
Posted on Monday, November 14, 2005 - 08:04 pm:   Edit Post Delete Post

Hi there Tom,
well first off i want to say thanks, i mean some people may disagree with your exercise, but you have taken this method you've have used for so long and instead of acting like the 'big' companies and sellin a couple of pages at $40 a pop, you've givin the information out for free! Sure you have a video and you deserve to! So it doesn't matter if your method works or not, thanks being so helpful to me. You've givin me a lot of hope.

Well to the matter at hand, I'm 18 now and and unlike most here i have blonde hair. I dyed my hair black to look cool, cuz ya know the ladies... haha. Anyway i decided to dye it again as the blonde roots were coming through. so I did, and yet right after i had done it, and were talkin the 2 days after i noticed the hair was begining to fall out. Now is it as common for blondes to lose their hair as dark hair??? Also was the dye some sort of contribution to the hair loss. I've found hair everywhere in the shower, on the sheets since the hair dyeing id say i lose around 100 - 150 a day.

Now my hair has not receded at the front at all, my mums dad is almost 80 with probably the best hair i've ever seen, my dad is in his 40's and yes though some has receded, it's safe to say i think he shall keep his hair happily. my dads dad was bald. I was just wondering if you knew how these factors will give some perspective into the chance i have of hair loss. Though it has thinned, its still thick and no bald spots yet, however finding so many hairs everywhere is driving me nuts!!! I have just left my family, and i mean left them as in im back in my home country England, and they are all living in America, and though i am dealing with a little stress, i dont know if thats a contributer.

None the less, i will start your routine as by the opinions it could work! Thanks again Tom,
Look forward to hearing from you
 

Tom Hagerty
Posted on Tuesday, November 15, 2005 - 10:45 am:   Edit Post Delete Post

joes:

I wonder what kind of dye you used. Certain scalps are sensitive to permanent dyes. Blonde hair shafts and the follicles that produce these shafts are probably sensitive too - more sensitive than the larger diameter hair shafts of black or red hair. My suggestion is to stop dyeing your hair. Treat it gentle. The chemicals in dyes can damage not only the hair shaft (the cuticle of the hair shaft), but damage the hair follicle too. The damage to the follicle, though, is not permanent.
 

jim
Posted on Thursday, December 08, 2005 - 12:12 am:   Edit Post Delete Post

I noticed a lump on my head it kind of felt like a pimple, I had it for a few months then it went away. I now have the same thing a few inches over. Do you think this is inflammation? Or BSS>?

I eventually lose hairs where this was happening, about a few weeks after noticing it
 

Beverly
Posted on Sunday, January 01, 2006 - 12:36 pm:   Edit Post Delete Post

My scalp hurts and burns around the crown area and goes down the sides and back of my head. This started 5 months ago - I have tried Nioxin, Theraputic shampoos, Natural conditioners for the scalp from the Health food store, Biotin, Folic Acid, MSM, Calcium-Magnesium, Nerve & Osteo support, High Stress B vitamins, Women's Daily One and Extra Strength Estroven - Nothing helps. When I massage my scalp more hair comes out, I'm afraid to brush it, glops of hair come out in the shower, the pressure from the shower water hurts my scalp and it just falls out. When I went to the doctor, she parted my hair to examine my scalp and told me she couldn't see anything wrong - when she manually parted my hair it hurt and I asked her not to touch my hair and scalp. She gave me a prescription for Amitriptyline 25mg - I haven't taken this medication because I researched the side affects. This scalp condition is very frightening - I didn't realize it could last a long time. If you have any suggestions on vitamins, herb supplements or anything, please respond.
 

Scalpmover
Posted on Sunday, January 01, 2006 - 04:04 pm:   Edit Post Delete Post

Beverly,

I'm starting the new year researching scalp tension and how to alleviate it. There's some interesting info I found on Tom's site and some technique described here:

http://www.hairloss-reversible.com/discus/messages/1/1785.html?1121926331#POST12 697
 

Beverly
Posted on Wednesday, January 04, 2006 - 10:25 am:   Edit Post Delete Post

Scalpmover:
Thank you for the information - I am going to fight this scalp condition. I mixed horsetail, sage, ginger, comfrey, green tea and Yogi detox tea in a cotton bag, lightly boiled in good water then mixed with LaMaur Bone Marrow hair conditioner. I used Jason Hair Thickening shampoo (without massaging my scalp)then used a vinegar rinse mixed 1 pt white vinegar to 3 pts H2O (patted and pressed on - did not rinse out)then gently patted and smoothed the "conditioner mix" left on approximately 5 minutes, then rinsed without shower water coming in direct contact with my scalp - No glops of hair were in the drain screen - I lost about 20 hairs. I was delighted and my scalp didn't burn or feel like pins were sticking it - usually large amounts of hair would come out while shampooing, combing and brushing. Now I'm going to try Jojoba Hair and Scalp tonic with rosemary and lavender. Everytime I used a product with "mint" or "menthol" in it - it would irritate my scalp more. Also started drinking Super-Green High Protein.
 

Rick
Posted on Thursday, May 04, 2006 - 11:23 pm:   Edit Post Delete Post

It seems like doctors just listen to you for ten minutes and then push you out the door so they can move on to the next patient. I guess you can’t really blame them, they need to make money but then again where does the insanity end?
I personally believe that hair loss is a symptom of other problems. I am also going through the same problems talked about here. Some doctors have also made me feel like I was making things up.
In the last 6 months I have gone from really thick hair to really thin on the top of my head. 6 months is not a long time.
We need to put our minds together and figure out this problem. There are a lot of common symptoms and I think that is a key to figuring this out. Head burning, that’s a given, the smaller symptoms that people don’t think are related I think should be listed anyway. The anxiety, stress, and major events seem like common factors. I think there is way more to this then just our head or the scalp. I think we are kind of in the dark age on this thing because the body is far more complex then we really can understand. I think there is something that we can do about this. Our bodies are a whole body. Our medical practitioners divide it all up so they can specialize in one particular area. But these symptoms are a clue to what is going on and shouldn’t be ignored because they occur in another part of the anatomy.
 

Apple
Posted on Saturday, July 01, 2006 - 01:38 pm:   Edit Post Delete Post

Hi guys my hair loss began when i was 19 am 22 now and i have some of the same symptoms, severe hair loss,red swollen scalp,flaking at times,oily scalp and non stop itching. I have seen three dermatologist and I was using a medicine called Ambeline for about a year wich worked at times better than others but it would only be a temporary fix for a month or so and now i think my scalp is so use to it that it doesnt work at all. Now the itching fells like its getting worst and my hair is so thin that it will be noticible very soon. When doctors see my scalp they say it looks fine and i fell that the only way i will be takin seriously is if i walk in there bald. I need some help I dont know were to turn or what to do anymore if anyone has any suggestions please let me know.
 

Joe
New member
Username: Bluegoblin

Post Number: 8
Registered: 08-2006
Posted on Saturday, August 19, 2006 - 09:58 pm:   Edit Post Delete Post

Read this about a no shampoo regime http://babyslime.livejournal.com/174054.html?page=4#comments

Someone pointed it to me, I didn't tried it yet but I think I'm going to.
 

momtothree
New member
Username: Hairtodaygonetomorrow

Post Number: 13
Registered: 09-2006
Posted on Thursday, November 09, 2006 - 07:15 pm:   Edit Post Delete Post

Wow very glad to have found this post.

I am female and also suffer from the burning scalp syndrome

I have come to two conclusions as to why my scalp burns.

#1 - Hormonal fluctuations and testosterone sensitivity - im at the age of perimenopause

#2 Possibly auto-immune inflamatory process

I have seen 6 docs, Endocrinologist, dermatologist (top in the country) another derm, OBGYN, Allergist and internal medicine specialist Out of all these doctors the best info I got was from the derm that is well known in the US. She suggested that people with androgenic alopecia do not suffer from severe burning heads like me! Her thought was that it was more of an inflamatory problem from within possibly fibromyalgia in nature and that one good treatment for this problem is neurontin I Hope I spelled that right.

I am now on a hormone birth control pill and when I go off of it for the 7 days, the pain seems to kick back in, thus my thought its androgenic in nature- however the burning that I feel would not be normal presentation for AGA

I am just glad to know there are others out there who suffer from the pain that I do. And I have found comfort in tea tree oil shampoo, nizoral and an advil a day.

I have also researched and talked to many women who also are hypothyroid and have the pain, they seem to go hand in hand at times. I am not hypo but just wanted to mention that.

If any women are reading Yasmin seems to have helped me and the pain. I also take Zinc, Mega vitamin C and a multiple vitamin
 

Jacob M
New member
Username: Jmak

Post Number: 41
Registered: 09-2006
Posted on Friday, November 10, 2006 - 05:31 pm:   Edit Post Delete Post

Tom,

I disagree that real scientists would not be interested in scalp exercises if it actually did stop or slow down hair loss. Think about it. Imagine if it was actually studied and shown on TV. Not all cures are have to have a dollar sign behind it. Believe fame itself would be worth more than money to some.
 

Tracy S
New member
Username: Moonlightonwater

Post Number: 1
Registered: 07-2007
Posted on Thursday, July 19, 2007 - 01:44 pm:   Edit Post Delete Post

I am a 44 year old African American female who had long, beautiful healthy hair. I also have had the same burning scalp syndrome (pain so severe that it felt as though my hair actually hurt) along with significant hair loss (from the root) for three years now. Doctors have done nothing in terms of helping to diagnose the problem…but based upon information from this site, I now see that possibly there is no known diagnosis or cure. I'm very unhappy with the continued hair loss. Though in the spirit of accuracy AND after seeing photos of women who have suffered from female patterned ballness, I still enjoy a full head of hair comparatively.

Initially, I thought that my hair loss was in relation to me taking intravenous iron supplements (Venofer and Infed ) (Dr. prescribed) to treat my pernicious anemia. However, the hair loss continues three years later (though increases when I have taken iron intravenously). I have treated the burning in the scalp with Cayenne Extract (or try Capzasin) it works wonders on the scalp pain; however, it has done nothing to slow the hair loss. I also read (please take this with a grain of salt) that Monistat 7 2% solution (yes, yeast infection medicine) helps to increase hair growth. I’ve been on a site (forgive me that I’m not recalling the address) where the women claim incredible re-growth using Monistat 7. I’ve just begun using this product with in the past 10 days, so I have nothing to report on it's effectiveness. These women proclaim 1-2 inches of new growth with in two months. I hope someone else finds success with these two uncommonly applications to treat our BSS.
 

Tom Hagerty
Moderator
Username: Admin

Post Number: 3332
Registered: 01-2003
Posted on Friday, July 20, 2007 - 08:48 am:   Edit Post Delete Post

Tracy S:

Some of the hair care products that African American women use can cause scalp and hair problems. When you go to the library pick up or reserve Paula Begoun's Don't Go Shopping For Hair-Care Products Without Me, 3rd Edition. Chapter eight - "For Women of Color" - is enlightening.

Do you still have anemia? Have you ever had the serum ferritin test? This measures the level of iron stores in the body. It is not the same test that doctors use to determine if you are anemic. You have to ask for this test specifically. Sometimes just raising the level to 70 ng/ml can improve the hair growth in women who have telogen effluvium or even androgenetic alopecia. Premenopausal women often have low levels of serum ferritin especially if they eat little or no red meat.

"I have treated the burning in the scalp with Cayenne Extract (or try Capzasin) it works wonders on the scalp pain; however, it has done nothing to slow the hair loss."

Read Kevin McElwee's article on The Burning Scalp Syndrome. This short article might give you some useful information.

Capsaicin prevents the transmission of pain but it's also an irritant and can trigger dermatitis. Kevin mentions it in his article, though, as a possible treatment for BSS.

Tell us if you have any success with Monistat 7. I wonder how a yeast infection medicine could stimulate hair growth. Weird.
 

Tracy S
New member
Username: Moonlightonwater

Post Number: 2
Registered: 07-2007
Posted on Friday, July 20, 2007 - 09:53 am:   Edit Post Delete Post

Tom:

I certainly agree that some of the hair treatments that African American women use may contribute to hair loss, but unless my body has recently become vulnerable to said treatments, I've used them for over 25 years. With that said: my hair thinning doesn't appear to be hair treatment/product related, but more closely tied to the pernicious anemia. I think you're on to something about that serum ferritin. I recall taking a test back in January and my level was at a 2!! Thank you for sharing that information about me getting it around 70….that certainly makes sense! Hopefully if this is doable, I can see my hair loss at least cease!
 

Tom Hagerty
Moderator
Username: Admin

Post Number: 3333
Registered: 01-2003
Posted on Saturday, July 21, 2007 - 10:06 am:   Edit Post Delete Post

Tracy S:

Two is terrible. I've heard that recovery from TE is almost impossible if the serum ferritin level is in the single digits.
 

Tracy S
New member
Username: Moonlightonwater

Post Number: 3
Registered: 07-2007
Posted on Sunday, July 22, 2007 - 01:33 pm:   Edit Post Delete Post

Really!? Regarding the single digits serum ferritin? Wow! Even if the numbers go back up? I was told that my most recent reading (April) was 57, but of course, that doesn't mean that it stayed at 57....
 

Tom Hagerty
Moderator
Username: Admin

Post Number: 3337
Registered: 01-2003
Posted on Monday, July 23, 2007 - 06:58 am:   Edit Post Delete Post

Tracy S:

Your April reading is OK - a lot better than 2. Getting the right balance between the omega-3 and omega-6 fatty acids, according to many researchers in hair loss, is also important in getting back and keeping healthy hair.
 

momtothree
New member
Username: Hairtodaygonetomorrow

Post Number: 15
Registered: 09-2006
Posted on Saturday, July 12, 2008 - 08:47 pm:   Edit Post Delete Post

I just got back to this post. I am now plagued with scalp pain for two and a half years. Back when I posted I was on Yasmin and a month later I stopped taking it. My pain had worsened it seemed. My eyebrows also burn and sting like my scalp and there is no mistaking the scalp turns red/pink. It gets seriously pink in the nape as though I have been rip roaring scratching it which I am not I can't touch it. The crown gets more of a hue of slight pink.

Where I am at now is I have been to even more doctors, full Rheumatologic panel and no real issues have been found really. So I sit here tired out. I have been on Elavil, Neurontin, Minocycline, Spiro, numerous vitamins and minterals and unfortunatly for myself it continues

I find these three things hell in combination and for me its of course the human pin cushion sensation mixed with a hornet gnawing on me, the bright pink color (signals obvious inflammatory process), thinning and worst yet complete change in hair texture from normal to a spider web like thin hair.

I really don't know what to do at this point. I have tried every topical shampoo and one thing that seems to help SOMETIMES is tricomin. Tea tree ended up not working, nizoral a no go... selsun blue medicated menthol helps real well temporarily.

Now answer me this - as I am a very intelligent woman, or I would like to think so - yet I can't seem to figure this. Stress makes it worse but not right away, it is a delayed reaction within about 15 minutes to a day of the stressor. BUT if for instance I were to drop something hard on my foot and it hurts like hell, the scalp starts to get pins and needles. WHAT is that? I most certainly am not entertaining the thought of my scalp when I drop a heavy object on the foot - so why on earth would it hurt?
 

Tom Hagerty
Moderator
Username: Admin

Post Number: 3578
Registered: 01-2003
Posted on Sunday, July 13, 2008 - 09:01 am:   Edit Post Delete Post

momtothree:

I'm copying and pasting an article by Kevin McElwee. It's on his website - http://www.keratin.com.
Some individuals who develop telogen effluvium, or other conditions where an increase in telogen hair follicles develops report painful burning sensations in association with the hair loss. Until recently this problem was not officially identified by dermatologists. Publications from the late 1990s have named these burning and pain sensations as "scalp dysesthesia", "burning scalp syndrome", or "trichodynia".

The cause of burning scalp syndrome is not understood and has not been researched in any detail. However, there is some preliminary research and much speculation that changes in the production and activity of neuropeptides in the skin may play a role. There is some evidence of an interaction between neuropeptides produced by nerve cells in the skin and the hair follicle cycle. In particular, skin and hair follicle concentrations of a factor called "substance P" fluctuate in tune with the growth and rest of hair follicles. Substance P can initiate pain sensations. In principle, it may be that as hair follicles are adversely affected in a hair loss disease and more of the follicles enter a telogen resting state the levels of substance P or similar neuropeptides in the skin significantly increase. The result is a painful sensation as hair loss progresses.

Alternatively, and more simply, hair loss can involve increased inflammatory cell activity, which can be fairly common in androgenetic alopecia, but much less so in telogen effluvium. A third explanation for burning scalp syndrome rests has been suggested based on an underlying psychiatric disorder in the affected individual.

Burning scalp syndrome is apparently treated by some dermatologists with tricyclic antidepressants. While these are typically used to treat depression and other similar disorders, it has also been shown that antidepressant drugs reduce substance P production. Thus anti depressants may work by directly reducing substance P levels in the skin and in so doing reduce localized pain sensations. Other suggested treatments have included non-irritating shampoos, topical antipruritic or anesthetic agents, topical capsaicin, and corticosteroids.

The treatments: I don't like any of them, but of course when you go to a doctor, you expect a prescription and he obliges you. Antidepressants (Elavil) in general have a negative effect on hair follicle health. Corticosteroids injected into scalp tissue thin the tissue and this thinning is often permanent. Thin scalp tissue is a horrible environment for hair follicles in the growing stage of the hair cycle.

You'll want to know what substance P is. Here is a clear statement about this neuropeptide.
When we experience stress, a neuropeptide known as substance P (SP) is released into both the skin and the brain. SP is a strong pro-inflammatory molecule. When released into the skin, it starts a flow of pro-inflammatory chemicals, resulting in the activation or exacerbation of skin disease.

SP can also slow hair growth and cause hair loss because of its ability to affect hair follicles. SP also affects the sebaceous glands by making them more active and by affecting their growth and creating the inflammation that can clog pores.

It is interesting to note that the skin of acne patients has a much greater number of these SP-containing nerves than the average person. Thus we can see the brain-skin connection is a powerful one mediated by neuropeptides, with the final common pathway being inflammation.

An inflammatory infiltrate is almost always found in hair follicles of people experiencing hair loss. Have you ever had a C-Reactive Protein test done? CRP is a protein found in the blood. It's a marker for inflammation.

Read my article about the Anti-inflammatory Diet. I think I'd prefer this "treatment" to a regimen of vitamin pills, antidepressants, corticosteroids, medicated shampoos, and antibiotics. But then perhaps I'm just hopelessly low-tech.
 

momtothree
New member
Username: Hairtodaygonetomorrow

Post Number: 16
Registered: 09-2006
Posted on Sunday, July 20, 2008 - 10:41 pm:   Edit Post Delete Post

Tom,

Thank you so very much for your post. I appreciate your taking the time. I will have to get out my labs and look for the C Reactive test. I did have a fairly normal scalp biopsy which is more puzzling. Yet I had a round of steroid shots in the nape about a year ago, it helped for about 3 weeks. I agree I don't want more of those it took about 15 pokes and it HURT.

The substance P makes sense. But I wonder what would bring something like this on out of the blue? And why so many of us with the same things, texture changes etc. It just does not seem to make sense to me. What is even more strange is men and women both are getting this. It's most bizarre. I feel at this point I have entered a chronic pain syndrome - once the pain kicks in and the nerves are hurt - I don't know if they ever recover.

I will read your link on the inflammatory diet. Thanks again for your efforts.
 

Tom Hagerty
Moderator
Username: Admin

Post Number: 3583
Registered: 01-2003
Posted on Monday, July 21, 2008 - 09:32 am:   Edit Post Delete Post

momtothree:

I wish you'd read the message I just posted to a guy in the UK - Message. Sometimes painful burning sensations ease up or even go away when people do the scalp exercise.
 

momtothree
New member
Username: Hairtodaygonetomorrow

Post Number: 17
Registered: 09-2006
Posted on Monday, July 21, 2008 - 04:47 pm:   Edit Post Delete Post

Tom thank you I will read that message. I had read about your scalp excercises before and I feel there is some real validity to this with the lymph flow you mentioned. I have a hand massager and I do find that it helps loosen the scalp thus offering me some temporary help until it tenses up again. My scalp is tensing due to some inflammatory process whatever it may be - anyhow thanks again for taking your time to read this and post.
 

spearmint
New member
Username: Spearmint

Post Number: 51
Registered: 03-2007
Posted on Sunday, July 27, 2008 - 02:21 am:   Edit Post Delete Post

Tom it is interesting the scalp exercises worked for you, considering you said your family were all bald. Can i ask did your mothers father have a full head of hair, as someone told me baldness comes from the mothers side, rather than the fathers side of the family?
 

Tom Hagerty
Moderator
Username: Admin

Post Number: 3586
Registered: 01-2003
Posted on Sunday, July 27, 2008 - 08:32 am:   Edit Post Delete Post

spearmint:

My mother had great red hair. I have dark hair like my father who was totally bald in his late thirties. I don't know anything about my mom's father.

"someone told me baldness comes from the mothers side."

Scientists who have studied the genetics of hair loss don't agree with this "someone."

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